Untitled-1UPDATE;  A support group attendee has volunteered to take on the support group.  I am very thankful that someone is willing to pick up the torch.  There will be a time of transition, so please continue to be patient.  I’m confident that the meetings will continue to be a great way for people to receive support from others.  Keep checking back to the website for future meeting dates.


It has been 5 years since I started treatment for Lyme Disease and co-infections.  I started this group shortly after I started that journey because there wasn’t a local area support group and I was searching for support from other people who were battling this complex and frustrating illness.  It was hard to start when I was so sick and struggling so much. I took on the task to help myself and others but at this time I have decided to step down as the Madison Area Lyme Support Group leader.

Tomorrow, Sept. 6th will be the last support group meeting that I host. 
Saturday September 6th (2014) from 2pm to 4pm, Madison Pinney Branch Library, 204 Cottage Grove Road, Madison, WI 53716

I have met so many wonderful people through this support group. As new people continue to get infected people will always search out help and support online and face to face.  Even though I do not want anyone to fall through the cracks I have decided that I need to create space in my life for other endeavors.  It is hard for me to let go of something that I know helps people so much but, I am hoping that someone else in the Lyme community will step up and lead the group just like I did 5 years ago.  I’m willing to hand over informational brochures and materials, and give advice to anyone looking to pick this responsibility up. Basically they would be the contact for the website (which I might be able to just transfer) and the person that schedules and reserves the meetings at the libraries. You are supposed to be present at the meetings but if you had someone helping you then if you are too sick they could fill in or you just cancel the meeting and post that on the website and anywhere else you posted the meeting information.  I use to do that in the early days of treatment.

For now, I’d like to direct everyone searching for help to the many online resources and support groups listed below.

I will keep the website up for now so that people can find these groups but eventually the site may disappear when someone chooses to start their own group with another website. I will be taking the contact option down, so it’s important to use the groups below to seek help.


Wisconsin Lyme Network

Wisconsin Lyme Network is a statewide non-profit.  It’s a great resource that lists support groups around the state, both online and face to face.  Click on this hyper link to go to their website: www.wisconsinlyme.net. Or you can contact them directly using this email address to ask questions (including doctor recommendations).  wisconsinlymenetwork@gmail.com



Wisconsin Lyme Yahoo Support Group

Contact: Mike Nickel miken@tds.net

Group URL: http://health.groups.yahoo.com/group/Wisconsin-Lymesupport/

Please e-mail to miken@tds.net to receive information on monthly support meetings throughout the state and other help.



Wisconsin/Illinois Lyme Facebook Group

This Facebook group is a great way to connect to others who are suffering from Lyme Disease and other tick borne diseases.  Here’s the link to the group.  https://www.facebook.com/groups/wisconsinillinoislyme/

The investigation continues! UNDER OUR SKIN 2: EMERGENCE is available on DVD starting today. Reconnect with the characters and controversies from UNDER OUR SKIN, discover how deep the institutional conflicts and collusion extend, witness the surge of Lyme disease worldwide, and learn about the latest Lyme research and activism. http://www.underourskin.com/sequel/

Under Our Skin




New Standard of Care Guidelines for Treating Lyme and Other Tick-borne Illnesses Released by International Lyme and Associated Diseases Society (ILADS)

Saturday September 6th (2014)

from 2pm to 4pm

Madison Pinney Branch Library

204 Cottage Grove Road, Madison, WI 53716


Thursday – May 29 – 6:30 pm
(Doors open at 6 pm)
Creekside Place
102 Maple St., Evansville

Under our Skin Flyer

Come and see Under Our Skin at Creekside Place in Evansville.

This award-winning documentary film tells the controversial story about Lyme Disease. Each year, thousands of people go undiagnosed or misdiagnosed, often told that their painful and debilitating symptoms are “in their head.”
The film follows the stories of Lyme patients fighting for their lives and Lyme physicians fighting for their livelihoods in a health care system driven by insurance companies. Short-listed for an Oscar in 2009, Under Our Skin has been named “best documentary” at film festivals around the country. The Los Angeles Times calls it “eye-opening, frightening, powerful stuff.” Running time is 103 minutes.

Admission is free.

Mike Nichols

Mike Nickel, past president of the Wisconsin Lyme Network, will lead a discussion following the film. The Wisconsin Lyme Network is an educational group dedicated to providing support, promoting research, and raising awareness about Lyme and associated diseases. Nickel is also moderator of an online Lyme support board which currently serves hundreds of people from all over Wisconsin. He lives in Wausau.

Here are a few photographs from this past week-ends Lyme Rally.  Thank you to everyone who showed up and took part in this important event.


Madison Lyme Rally Poster w websites

Worldwide Lyme Disease Awareness Event – Madison, WI

May is Lyme Disease Awareness Month and this rally is just one of many events that will be taking place worldwide. The purpose of the rally is to help raise awareness about this growing epidemic in our state and worldwide.

Everyone is welcome and encouraged to attend the rally. There will be informational materials available, personal stories from those with Lyme Disease, and Statewide Lyme Disease advocates on hand to answer your questions.

We are also pleased to announce that State Rep. Gary Hebl of the 46th Assembly District will address the crowd and speak about his most recent work on Lyme bill (AB751).

Starts at 11am goes till 2pm
Date: Saturday, May 17th, 2014
Location: The Wisconsin State Capitol taking place outside on the State Street side of the building.  (This is a free event)


This event is taking place during the Dane County Farmers Market. The market is always very busy so it’s a good idea to plan ahead of time and figure out your parking and give yourself enough time to get to the State Street side of the Capitol.  If you are from out-of-town use Google maps to help you find your way.

Google map of the Capitol Square.  Go to the State Street side of the building.  http://goo.gl/maps/K39FS

Parking:  https://www.cityofmadison.com/parkingutility/maps/downtown.cfm

*You could also drive into town, park your car and take a taxi cab up to the square.  Call 608-242-2000 or visit www.unioncab.com.  You can use the following link to go directly to the “Order a Taxi” page.  https://weborders.unioncab.coop/order/


***Dropping off people at the Dane County Farmers Market***

***to attend the Lyme Rally by vehicle***

There are handicap parking spaces in the driveways that lead up to the doors of the Capitol Building on 4 sides of the building. There are 3 spots in each drive way. You must have the legal handicap stickers, or placard on or in your vehicle displayed for them to see to legally park there.

As an option for those in wheelchairs or people not able to walk from the parking ramps to the State Street side steps you can be dropped off by vehicle on the Wisconsin Ave. or West Washington Ave. side of the building in the circle driveways. Then you can walk to the State Street side of the building or be pushed in your wheel chair on the  upper/inner sidewalk that is closest to the building. The rally takes place at the top of the steps on the State Street corner of the building.

I have made a picture map to give you a better idea of what I am talking about.  You can click on it to enlarge the photo for better viewing.

handicap parking and drop off copy

Above shot of State st side of building copy


proclamation from the gov.Proclamation from Wisconsin Governor Scott Walker

that May is Lyme Disease Awareness Month.



Please help spread the word about this event.  Here are a couple flyers you can download and print off to hang up.

Flyer with ribbon and websites

Flyer w ribbon and tear offs and websites

Flyer with Photo and tear offs and websites


You can also find this event listed on Facebook.



For information about the Farmers Market you can visit their website here.   http://dcfm.org/




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